A joint initiative of the Centre for Biomedical Ethics (CBmE), NUS Medicine and the Patient Advocacy and Support Office (PASO), NUHS

Mapping

Mapping PPIE across NUS Medicine and NUHS

Involvement resources already exist across both institutions, held by different teams under different terms. This page records what the Lab knows so far: what each resource is, who manages it, and whether research teams outside the host group can use it. It is a working document, and the entries marked as unconfirmed are the subject of the mapping exercise.

How access works

Research team with a question PACT Lab matches the question Public input at scale HOPS, and the trained public reviewer panel An existing panel elsewhere referred to the team that convenes it A condition-specific group brokered through clinical teams and partners

PACT Lab does not hold most of these resources. Its contribution is knowing what exists, what each is suited to, and who decides on access, so that teams reach the right group and existing panels are not approached at random or asked for more than they can give.

Resources held within the partnership

Public panel

Health Opinion Panel Singapore (HOPS)

A demographically representative public panel of over 4,000 members, used for public attitudes and for questions that do not require experience of a particular condition. Held at CBmE.

Managed by CBmE · Allocated access · About HOPS →

Patient and caregiver partnership

Patient Advocacy and Support Office (PASO)

NUHS-wide patient and caregiver experience, advocacy, and partnership, including patient and family partnership structures and caregiver advocacy across NUHS institutions.

Managed by PASO, NUHS · Case by case

Resources held elsewhere across the two institutions

Recorded from conversations to date. Terms of access are as understood by the Lab and are being confirmed with each host team.

Patient panel

Patient and Family Advocacy Council

Patient and family advocacy for primary care, at National University Polyclinics.

Chaired by Haresh Singaraju · Terms of access unconfirmed

Patient panel

NUGEM EMERALD Panel

Patient and public engagement panel at the Centre for Genomic Medicine, for questions arising in genomic research.

Co-led by Ng Kar Hui · Terms of access unconfirmed

Participant database

Investigational Medicine Unit

Patients and healthy volunteers recruited for early-phase trials, proposed as a source of contributors to study design in disease-specific groups.

NUHS · Under discussion

Researcher training

Clinician Scientist Academy

Workshops and training for clinician scientists and other researchers across NUHS, and the route through which researcher-side involvement training would be delivered.

Research and Innovation Office, NUHS · Open to NUHS researchers

Programme with involvement practice

Centre for Holistic Initiatives for Learning and Development (CHILD)

Involvement practice within a research programme on child development, and a source of methods and experience for paediatric work.

NUS Medicine · Terms of access unconfirmed

Qualitative resource

Health Experiences Singapore (HEXI-SG)

Collected accounts of health experiences, in the Division of Family Medicine, drawn on for understanding patient perspectives in context.

NUS Medicine · Terms of access unconfirmed

Not yet mapped

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Panels convened by individual programmes

Groups convened for a single grant, centre, or condition, often not recorded anywhere central and known only to the teams that run them.

Subject to the mapping exercise, 2026–2027

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Community and patient organisations

Organisations outside the two institutions that hold relationships with particular patient communities, and the terms on which research teams may approach them.

Subject to the mapping exercise, 2026–2027

What the map is for

The point of the map is not to list the teams that already do involvement well. It is to record which resources exist, who manages them, and how access is decided, so that any research team can be directed to the right one. The Lab's aim is that involvement becomes something every research team does, which means the map has to serve teams with no involvement practice of their own.

Corrections and additions are welcome. If your team convenes a panel, holds a participant database, or works with a patient community, the Lab would like to record it.

Tell us about a resource →